IndoUSrare

The Indo U.S. Organization for Rare Diseases (IndoUSrare) is an independent non-profit organization  dedicated to supporting individuals affected by rare and underserved medical conditions of Indian origin in the USA, India, and globally. 

Our goal is to provide comprehensive support through fostering collaborations among researchers, healthcare providers, and patient communities. We focus on research and development of diagnostics and therapies, and provide education, advocacy, research, and grants to the USA and the Indian subcontinent. 

At IndoUSrare, our mission is to proactively establish and sustain patient-centric education, awareness, training, research, and engagement programs that align with the FDA's patient-focused drug development (PFDD) paradigm through: 

Diversity Patients Alliance Program 

Tech-enabled Patients Concierge 

Corporate Diversity Advisory Council (CDAC) 

Research Programs 

National and International Conferences